Marianna came through the initial procedures this morning just fine, with no pain (other than the "bikini wax" of having the bandages abruptly removed-ouch! ). The doctor was able to remove 850cc of nasty liquid from her lungs, so she is breathing MUCH better now and her attitude is improved. She was pretty depressed and frustrated yesterday. (not her usual self at all, I know)
We are still waiting for the doctor to tell us what else needs to be done in terms of bowel blockage, and why she has fluid leaking when the cat scan showed no fluid in the abdomen. Discovering that the process is a lot of waiting around. Waiting for doctors to share information (or not) waiting for nurses to bring what she needs (or not) and now we are waiting for a Patient Representative to call back so we can complain about the lack of cooperation. Frankly we are just not seeing the level of care we have come to expect from St Jude's in the past, and that is frustrating.
Otherwise Marianna is in good spirits and breathing is MUCH improved. If you would like to make a SHORT phone call or visit, it would brighten her day, as long as she does not overtax herself.
Will post again after we speak with a doctor to find out what is next with her abdomen/bowel issues.
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